Welcome to the Official Website of the ALBINO-Study

EU-funding period has come to an end in June 2025, but several additional grants keep the ALBINO project alive:

In total, the ALBINO study has recruited 506 patients in 10 European countries from 2017 to 2024.

440 out of 497 (88.5%) participants of the ALBINO study who have reached 2 years of age as of February 1, 2026, have a documented primary end-point in the ALBINO study database.

For the remaining participants we foresee completion of follow-up until early summer 2026.

We are grateful to all the participants, parents and families for their continuing support!

To all parents of study participants who have not yet completed their 2 year follow-up: please help the study by responding to contact requests from your respective study site and report outcomes!

Thank you!